Friday 1 May 2009

5.25 a.m.; 5.25 a.m.: why?

i can relay on Ix to wake me up, daily by 7.30 a.m. at the latest.

but sometimes he gets into a routine - he wakes up, i look at clock; 6.57. next morning, same time, 6.57.

but this morning and day before: 5.25. a.m. not even CBEEBIES is awake...tho they do put a nice doodeedoodedoo with visuals up - you will know if you have tuned in before 6.00 a.m.!

so he wakes up, gets out of bed, grunts at me to come, puts remote control in my hand, then his communciation device to turn it on..then we sit and talk about the day, where are we going on the weekend, and which CBEEBIES character has lost what...

I try and get away with lying down and closing my eyes, but being autistic he doesn't even notice my eyes are closed...

(try it with a non-ASD child - they will immediately start saying "open your eyes mummy!!")

but he sits on me, grunts and grabs my hand to point to the device or a word in a book or whatever.

when he types and the device says loudly: "please may i have an apple" i have no choice but to get up...

at least going to bed is controlled by melatonin - it guarantees to get him to sleep within 40 minutes of taking it. which is a major difference from those long nights of being up til 11, 12, 1.0 a.m. with a child who refuses to sleep

but increasing amount of sleep is another matter...

not a teenager yet! maybe when he turns 13 in October...

but will try keeping him up later tonight...generally tho it makes no difference. once stuck on a time, that is it for a few days... maybe going swimming with school today will help?

aargh.....zzzzzzz.

1 comment:

Tina said...

Sorry to take away your Hope but Rosie is 17 now and 4.30 is where we are stuck!
hugs